Weekly CSR Email Newsletter
International Symposium on Sustainable Manufacturing @ Shanghai - 2012/04/11
International Conference on Green Buildings and Optimization Design @ Shenyang - 2012/05/17
2012 International Conference on Green Building and Civil Engineering @ Guizhou - 2012/05/19
Annual Conference of the Academy of Innovation and Entrepreneurship 2012 @ Macau - 2012/06/08
Water Quality 2012 @ Hangzhou - 2012/09/19
China Offers Aid To Patients With Rare Diseases
March 3, 2010 |
Print
| 
Email
| 
Comments | Category: Health
China Charity Federation and China Health Education Center, together with several other parties in China, have jointly launched a public welfare initiative to increase the public's awareness of rare diseases.
It is said that the month-long initiative will be presented in the form of lectures and seminars and it will be first done on the campuses of Peking University and Tsinghua University. The organizer of the initiative said that they hope to draw the public's attention to patients with rare diseases so more sustainable medical services can be offered to them.
China's Ministry of Civil Affairs said it will include patients with rare diseases into the charity aid system of China in 2010.
The World Health Organization defines rare diseases as diseases that affects 0.65 to 1 person out of every 1,000 patients. WHO states that brittle bone disease, Albinism, and Fabry disease are all examples of rare diseases.
At present, there are 5,000 to 6,000 confirmed rare diseases, about 80% of which are genetic in origin, and only about 1% of these can be treated with the medicines currently available. Based on the WHO estimates, China currently has more than 10 million people suffering from rare diseases.
Rate this page: 
Loading ...One Response to “China Offers Aid To Patients With Rare Diseases”
Leave A Comment:
-
Education
- HTC Chairman Sets Up New Charitable Foundation
- American Medical Company Plans Physician Training With New Beijing Outpost
- Chinese Universities Sign Education Deals With Christian American School
- New "100,000 Strong Initiative" Hopes To Build U.S.-China Golden Bridges
- Best Buy Creates Education Fund In China
-
Energy & Cleantech
-
Environment
-
Giving
-
Happenings
-
Health
- Legal Action Against Counterfeit Cigarettes In America Could Impact Chinese Makers
- New Collaboration In China Aims To Provide Low-cost Medicines
- Carrefour's Beijing Stores Gain Green Market Certification
- American Medical Company Plans Physician Training With New Beijing Outpost
- New Healthcare Chief Named For GE China
-
Labor
-
Law & Order
-
Viewpoints
- Companies Can Help In The March Towards Better Consumer Rights In China
- CSR Review: Companies Have More Opportunities To Develop In China
- How Far Can Chinese Companies Take Corporate Social Responsibility?
- CSR Review: Companies Focus On Sustainability In China During Downturn
- Global Financial Woes May Impact Corporate Social Responsibility In China
Copyright 2003-2012 ChinaCSR.com. All Rights Reserved.
If you would like to syndicate these articles and posts, please utilize the RSS feed for this online publication, which provides a brief summary of each post with a link back to the original article. Posting of any other part of the articles or posts on this website, in whole or in part, is expressly prohibited without express written permission from ChinaCSR.com. Twitter ChinaCSR.com
How can one get in touch with the organizers of this effort? I represent a patient organization for Hermansky-Pudlak Syndrome, a rare disorder (that I also have). We have some folks of Chinese origin in the US that have this disorder and would like to find contacts in China to help build awareness there.